Weltweit leiden immer mehr Patienten unter Seltenen Erkrankungen. Mittlerweile sind mehrere Tausend dieser auch Orphan Diseases genannten Erkrankungen bekannt, was die Diagnosestellung für den Arzt sehr erschwert. Aber es gibt hilfreiche Informationsquellen und praktische Unterstützung für Mediziner und Therapeuten, die...
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